University of Sydney, Dept. of Sociology and Social Policy

Australia

Ethical, legal and social issues (C. Waldby)

Institute of Clinical Neurobiology

Austria

Probes from VITA aging study, assessment of amyloid, paraffin-embedded blocks of degenerative diseases, frozen half-brains from Alzheimer disease and aged controls (A. Jellinger)

Pathology Institute, Otto Wagner Hospital (PATOWS)

Austria

Paraffin embedded tissue of central nervous system from neurodegenerative diseases (J. Attems, F. Lintner)

AKH Biobank

Austria

Disease-focused Biobank (ageing & lifestyle diseases) (C.Marsik)

IMBA – Institute of Molecular Biotechnology GmbH

Austria

Functional genomics (J. Penninger)

VETBIOBANK

Austria

Disease-focused biobank (animal disease models) (I. Walter)

Oridis-Biomed GmbH

Austria

Development and implementation of in-vitro diagnostics, in vitro prognostics and companion diagnostics (N. Wick)

CLST Cryo Life Science Technologies

Austria

Cryo-Logistics Provider Company, (G.H. Thiessen)

University Hospital of Liege

Belgium

Tissue bank (J. Boniver)

Université Libre des Bruxelles, Erasme Hosptal

Belgium

tissue from bio specimens, organs and pathologies, cancers, inflammatory diseases (N. Watteau)

University Medical Center Gent

Belgium

Disease-focused biobank, longitudinal, Asthma, allergy: 4 Cohorts (Postma)

University Hospital of Liege  and University of Liege

Belgium

tumor tissue samples: frozen tissue blocks - lymphomas, frozen cell suspensions, frozen cytobrush, tissue blocks in paraffin, DNA (F. Olivier)

Fund for Scientific Research

Belgium

creation of a contact group “Biobanking” information exchange platform (M.J. Simoen, J. Boniver)

Cliniques Universitaires Saint-Luc, Université Catholique de Louvain

Belgium

Tumor tissue samples, nodes, breast, ORL, colon (P. Cornet)

Institut Jules Bordet, Université Libre de Bruxelles (ULB)

Belgium

tumor frozen blocks from different origin, PCR, RT-PCR, TMA, IHC (D. Larsimont)

Labco Diagnostics

Belgium

Network of private laboratories across Europe and represented in F, IT, ES, P, G, BE

Fonds Wetenschappelijk Onderzoek – Vlaanderen (FWO), Research Foundation Flanders

Belgium

Flemish Universities: Biobank mainly clinical, most of the time desease oriented, seldom population based

EORTC – European Organisation for Research and Treatment of Cancer

Belgium

Non-profit international cancer research organisation (Francoise Meunier, Denis Lacombe)

Molecular Medicine Centre

Bulgaria

DNA Bank, Tumour Fresh Frozen Tissue (R.P. Kaneva)

Public Population Project in Genomics - P³G

Canada

Non-for-profit organisation promoting collaboration between researchers in the field of population genomics (I. Fortier)

DNA Genotek

Canada

DNA (S.White)

The Cyprus Institute of Neurology and Genetics

Cyprus

(P.C. Patsalis)

Masarkyo Memorial Cancer Institute

Czech Republic

Tumour samples, non-tumor tissue (R. Nenutil)

Genetics Resource Centre – GRC, Ministry of Health and Social Affairs

Faroe Islands

Tissue bank, Genealogy & Diagnosis Registry (S.O. Vang)

Ministry of Social Affairs and Health

Finland

Ministry (K. Leppo)

National Public Health Institute

Finland

Population-based biobank (M. Perola)

Inserm Toulouse

France

Biobank (C. Cambon)

NEUROBIOTEC BANQUES-CRB Hospices Civils de LYON

France

Disease-focused biobank (N. Dufay)

Tumorothèque - CRB des Hospices Civils de Lyon

France

Disease-focused Biobank (J.Y. Scoazec)

Hôpital Necker Paris – Necker DNA bank

France

Disease-focused & population based biobank – rare diseases, familiy cohorts (C. Antignac)

GIE Neuro CEB Paris

France

Disease-focused biobank – brain tissue (M.V Artaud)

University Hospital Angers

France

Disease-focused biobank – rare diseases (A. Barthelaix)

Hôpital Beaujon Clichy

France

Disease-focused biobank – tumour tissue (P. Bedossa)

Centre René Huguenin, Pathology Department

France

(F. Bertrand)

Centre Hospitalier Universitaire d’Amiens, Biobanque de Picardie

France

Disease-focused Biobank, BRC platform, proteomics (F. Betsou),

Fondation Jean Dausset-CEPH Paris

France

Population-based biobank – DNA, BPL (H. Blanché)

Hôpital d’Enfants Armand Trousseau

France

Disease-focused biobank – tumour tissue (L. Boccon-Gibod)

Biological Resource Center of Dijon, University Hospital CHU Dijon

France

Disease-focused biobank (A. Bonnin)

DNA and Cell Bank – Federative Institute for Research in Neurosciences (IFR70)

France

Disease-focused biobank – DNA & cell lines (A. Brice)

Tumorothèque Necker-Entants Malades

France

Disease-focused biobank – tumour tissue, DNA, RNA (N. Brousse)

Human Genome Diversity Project-Centre d’Etude du Polymorphisme Humain, HGDP-CEPH

France

Lymphoblastoid cell lines from blood samples (H. Cann)

BRC Marseille
FNLCC

France

Disease-focused biobank – tumour tissue (C.Chabannon)

Inserm ERI 20
Villejuif

France

Population-based biobank – blood (F. Clavel-Chapelon)

Biological Resource Centre of Tours, ESF Centre Atlantique, CRBT

France

(I. Desbois)

Leishmania Cryobank of Montpellier

France

Disease-focused biobank – Leishmania strains (J-P Dedet)

Institut Jean Godinot

France

Disease-focused biobank – tumour tissue (Ch. Delvincourt)

APHP Saint Louis Paris

France

Disease-focused biobank – cancer tissue (A. Janin)

CRB du réseau Francais d’Etude Généthique de la Sclérose en Plaques, Inserm UMR S 546 Paris

France

Disease-focused biobank – DNA (B. Fontaine)

BRC Créteil

France

Disease-focused biobank – rare diseases (B. Ghaleh-Marzban)

Centre Paul Strass Strasbourg

France

Disease-focused biobank – tumour tissue (D. Ghnassia)

Tumorothèque Nationale Franche Comté

France

Tumor Biobank (B. Kantelip)

Air Liquide, Société Anonyme pur l'Etude et l'Exploitation des Procédés Georges Claude

France

Cryo storage, sample preservation and logistics (M. Lemaire)

The Nancy Teaching Hospital Center for Biological Resources

France

Disease-focused biobank (N. Martinet)

BRC Strasbourg

France

Disease-focused biobank – tumour tissue (A. Neuville)

Clinical Investigation Centre INSERM CIC-0502 Brest

France

Disease-focused biobank, diagnostics & imaging of venous thromboembolism (E. Oger)

Tumorothèque CHU de St Etienne

France

Disease-focused biobank – tumour tissue (M. Peoch’h)

L’Institut du Thorax – UMR 533 (Biocollection Cardiovasculaire et Métabolisme « BC2M »)

France

Population-based & disease-focused biobank – CVD tissue & DNA (C. Petit-Le Manach),

BRC-Centre Léon Bérard, Lyon

France

Disease-focused biobank – cancer tissue and blood (M. Rousseau-Tsangaris),

University Hospital Rouen

France

Disease-focused biobank – tumour tissue (J.-C. Sabourin)

IAC Angers

France

Disease-focused biobank – tumour tissue (J.-P. Saint Andre)

GENETHON, Banque ADN Evry

France

Disease-focused biobank – DNA (S. Saker-Delye)

Institut Curie, Centre de Ressources Biologiques, Départment Biologie des Tumeurs

France

Biological resources (X. Sastre-Garau)

Hopital Cochin, Paris, Service d'Anatomie Pathologique

France

Disease-focused biobank – tumour tissue (B. Terris)

Institut Mutualiste Montsouris Paris

France

Dsease-focused biobank – tumour tissue (P. Validire)

Hôpital Maison Blanche Reims

France

Toxoplasma gondiistrain collection (I. Villena)

Stanislas Cohort (IGE-PCV), INSERM U525 Nancy

France

Disease-focused biobank – CVD blood, blood cells & DNA (S. Visvikis-Siest)

University Hospital Morvan brest

France

Disease-focused biobank – tumour tissue (A. Volant)

Hospices Civils de Lyon

France

Disease-focused biobank - tumour tissue, blood, CSF (M.C. Mazé)

ITERT-Uro-Néphro, INSERM U643

France

(M. Giral)

BRC Hôpital Cochin Paris

France

Biobank (J. Chelly)

CARDIOBIOTEC- CRB Hospices Civils de LYON

France

Disease-focused Biobank (C. Perrin)

Clinical Investigation Centre Marseille

France

Biobank (O. Blin)

Inserm, Nantes

France

Biobank (D. Riochet)

Institut Pasteur Paris

France

Biobank (M.-N. Ungeheuer)

Competence Network for HIV/AIDS

France

Disease-focused biobank (A. Skaletz-Rorowski)

BRC Epigenetec Paris

France

Biobank (P. Laurent-Puig)

E3N Biobank

France

Population-based biobank (V. Hélin),

Genopole

France

Analysis platforms, stem cell research (F. Russo-Marie)

ICAReB platform

France

Clinical investigations & access to biological resources (M-N. Ungeheuer)

EuroBioBank

France (EU, international)

Rare disease biobank network (F. Bignami)

GENEMOVE University of Tuebingen, Department of Medical Genetics

Germany

Disease-focused biobank – neurological & psychiatric diseases, DNA (P. Bauer)

Competence Net Pediatric Oncology and Hematology; Biobank for Embryonal Tumors

Germany

Disease-focused biobank – tumour tissue (F. Berthold)

Muscle Tissue Culture Collection, Friedrich-Baur-Institute and Department of Neurology, Ludwig-Maximilians-University of Munich

Germany

Disease-focused Biobank - Muscle Tissue Culture Collection (H. Lochmüller)

German Competence Network for HIV, AIDS

Germany

Sera collection (N. Brockmeyer)

Philipps-Universität Marburg

Germany

ELSI for Biobanks (P. Dabrock)

POPGEN University Hospital Schleswig-Holstein, Campus Kiel

Germany

Population-based biobank, (H. von Eberstein)

Institute of Science and Ethics, University of Bonn

Germany

Biobank ELSI (M. Fuchs)

Unabhängiges Landeszentrum für Datenschutz (LD)

Germany

IT security for Biobanks (L. Gundermann)

DNA-Collection of Juvenile Idiophatic Arthritis

Germany

DNA collection (J.P. Haas)

Survey of neonates in pomerania

Germany

Prospective population based study observing newborns (J.P. Haas)

Heinz Nixdorf Recall Study

Germany

Population-based biobank – CVD, cancer, mental disorders, blood DNA (K.H. Jöckel),

SHIP, SepNet Central Sample Bank

Germany

Disease-focused biobank - blood (M. Kiehntopf)

BrainNet Europe

Germany

Consortium of 18 European brain banks (H.A. Kretzschmar)

German Dementia Competence Network

Germany

Population-based & disease-focused biobank – cognitive disorders, DNA, blood (W. Maier)

Central Biomaterialbank of the German Competence Network for Heart Failure (GHFN) [Kompetenznetz Herzinsuffizienz (KNHI)]

Germany

Disease-focused biobank - CVD blood(C. Özcelik)

DSMZ-Deutsche Sammlung von Mikroorganismen und Zellkulturen GmbH

Germany

Biomolecular resources, cell line collections

(E. Stackebrandt, H. Quentmeier)

TMF Telematikplattform Medizinischer Forschungsnetze

Germany

ELSI, Quality, Harmonisation, Standardization of Biobanks (S. Semler)

Danubian Biobank Consortium

Germany

Population-based & disease focused biobank – metabolic diseases (G. Schmitz)

CRIP (Central Research Infrastructure for Molecular Pathology)

Germany

Disease-focused Biobank network (Germany-Austria), internet acess (C. Schröder)

DPZ, Deutsches Primatenzentrum GmbH

Germany

Primates, animal repository (R. Teepe)

Study of Health in Pomerania

Germany

Population-based biobank (H. Völzke)

NFGN Working group “Quality management and Standards” (AGQM) of the National Genome Research Network (NGFN)

Germany

Biobank Quality Management (S. Wiemann)

GEPARD (Gene Bank Parkinson’s Disease Germany) in the German Competence Network on Parkinson’s disease (CNP e. V. - charity)

Germany

Disease-focused biobank – movement disorders (U. Wüllner)

GDK Gemeinschaft Deutscher Kryobanken e.V.

Germany

Network of Biobank Cryo Technology (H. Zimmermann)

IKC, Institute of Clinical Chemistry

Medical Faculty Mannheim

University of Heidelberg

Germany

Disease-focused biobank, quality assurance (M. Neumaier)

ImaGenes GmbH

Germany

Gene clone collection (J. Maurer)

Klinik für Chirurgische Onkologie, Robert-Roessle-Klinik, Charité Universitätsmedizin Berlin

Germany

Disease-focused biobank (W. Kemmner)

KORA-gen (Cooperative Health Research in the Region of Augsburg)

Germany

Population-based biobank – blood, DNA (H.E. Wichmann)

Qiagen GmbH

Germany

Biotech industry, sample processing and preparation (A. Quandt)

BioStorage Technologies

Germany

Secure compliant sample storage, inventory management, cold chain logistics ( W. Höffer)

ETSI-med GmbH

Germany

Cancer, disease oriented (C.Reymond)

The Hellenic National Biobank Foundation for Biomedical Research of the Academy of Athens

Greece

Disease-focused biobank – blood, tissue, rare diseases, cancer Coordination of Greek Cancer Research Network (A. Pintzas)

Uzsoki Teaching Hospital

Hungary

Frozen Tissue samples in liquid nitrogen (Z. Baranyai)

Hungarian Biobank

Hungary

Disease-focused biobank – cancer, rheumatoid arthritis, asthma; DNA (B. Melegh, A. Falus)

National Institute of Environmental Health (NIEH)

Hungary

Disease-focused biobank – DNA, blood, neuromuscular & mitochondrial diseases (M. Karcagi)

University of Pécs

Hungary

Disease-focused biobank – DNA, rare diseases, metabolic diseases etc. (B. Melegh)

Landspitali – University Hospital, C13

Iceland

(K. Erlendsson)

Biostór Ireland

Ireland

Tissue establishment for storage, distribution of human tissues and cells for human use, bone marrow, therapeutic stem cells, reproductive cells, umbilical cord blood (P. Mac Gabhann)

Trinity Biobank

Ireland

Population-based & disease-focused biobank - DNA (J. McPartlin)

Department of Community Medicine and Epidemiology, Carmel Medical Center and B. Rappaport Faculty of Medicine

Israel

DNA, sera, lymphocytes, paraffin blocks, fresh tumor tissue (F. Lejbkowicz)

Ministry of health (CSO-MOH)

Israel

Descrpition of biological materials, data, technologies

National Laboratory for the Genetics of Israeli Populations (NLGIP)

Israel

Interested in following activities:

WP3: sample handling, storage, processing and distribution

WP7: legal and ethical guidance

WP8: coordination with other international actvities

WP9;: standardization and quality management

Israel National Tissue Biobank

Israel

D. Horn

Memory Clinic, NeuroBioGen Lab, IRCCS S. Giovanni di Dio Fatebenefratelli

Italy

(G. Binetti)

Telethon Network of Genetic Biobanks

Italy

Coordination of seven Italian biobanks (F. D. Bricarelli)

VAS - Vascular - Independent Research and Education - European Organisation - c/o Research Centre of Vascular Diseases, University of Milan

Italy

Disease-focused biobank – vascular diseases (M. Catalano)

BioRep S.r.l.

Italy

Cell culture banking (P. de Blasio)

Bank of DNA, Cell Lines and Nerve-Muscle-Cardiac Tissues. UOS Servizio di Diagnostica delle Malattie Neuromuscolari. Fondazione Ospedale Maggiore Policlinico IRCCS, Universitá degli Studi Milano

Italy

Population-based & disease-focused biobank – neuromuscular diseases, tissue, DNA, muscle cell culture (M. Moggio)

Fondazione I.R.C.C.S. Istituto Neurologico C. Besta

Italy

Disease-focused biobank – neuromuscular disease, muscle tissue, DNA (M. Mora)

Second University of Naples – Cardiomiology and Medical Genetics

Italy

Disease-focused biobank – (cardio)myopathies, tissue, DNA (L. Politano)

Biobanking Network and Molecular Evidence Medicine Group (BN-MEM)

Italy

Virtual archive tissue bank (G. Stanta)

Da Vinci European Biobank

Italy

Urine, plasma, serum samples (P. Turano)

Biobanca Italiana, Center of Transfusion Medicine, Cellular Therapy and Cryobiology (CMTC), Department of Regenerative Medicine, Foundation Ospedale Maggiore Policlinico, Mangiagalli e Regina Elena

Italy

Disease-focused biobank (P.Rebulla)

BioRep S.r.L.

Italy

(M. Piovella)

Centro Substrati Cellulari, Istituto Zooprofilattico della Lombardia e dell'Emilia Romagna, Brescia

Italy

Disease-focused biobank (M. Ferrari)

Comitato Nazionale per la Biosicurezza e le Biotecnologie

Italy

(LoS, L. Santi)

IRCCS G. Gaslini, Pediatria II, PRINTO

Italy

Disease-focused biobank, pediatric rheumatology, family histories, serum and DNA samples, (N. Ruperto)

Neuromuscular Bank of Tissues and DNA Samples, Telethon

Italy

Population-based & disease-focused biobank - neuromuscular disease, muscle tissue, DNA, cultured cells (C. Angelini),

Research Laboratories Catholic University

Italy

Population-based & disease-focused biobank (M. B. Donati)

Biobanca Istituzionale Istituto Tumori Giovanni Plo II – Bari

Italy

Disease-focused biobank (G. Pelagio)

Department of Public Health Sciences, Sapienza University of Rome

Italy

Organisation (S. D’Amelio)

Biobank of the National Institute for Infectious Diseases, INMI IRCCS “L.Spallanzani”

Italy

Repository of clinical samples from infectious disease patients, viral strains and cell lines (A. Di Caro)

Ceinge-Biotecnologie Avanzate President Prof. Francesco Salvatore

Italy

Patients with neuromuscular and cardiac diseases (G. Fortunato)

CNESPS at the National Institute of Health in Rome

Italy

Population-based biobank (Simona Giampli)

Integrated Biobank of Luxembourg (IBBL)

Luxembourg

Disease/ Tissue focused biobank, starting with lung cancer and glioblastoma

Thalassemia DNA Biobank, Unersity of Malta, Molecular Genetics Lab

Malta

Euro-Biobank Member (A. Felice)

Hôpital Pierre Zobda-Quitman
Fort de France

Martinique ( Caribbean)

Disease-focused biobank – tumour tissue (M. Landau-Ossondo)

PHOEBE, Norwegian Institute of Public Health

Norway

PHOEBE Promoting the Harmonisation of Epidemiological Biobanks in Europe, coordination action establishing a collaborative research network (J. Harris, E. Shaw)

Oslo Clinical Research Biobank Consortium, Ullevaal University Hospital Trust

Norway

Population-based biobank - blood (R. Bjugn)

The Research Council of Norway

Norway

(LoS, A. Hanneborg)

International Hereditary Cancer Center

Poland

Cancer biobank, biological samples, clinical data (J. Lubinski)

Bank of Frozen Tissues and Genetic Specimen, Medical University of Gdansk

Poland

Disease oriented, cancer (J. Skokowski)

Hospital de Santo Espírito de Angra do Heroísmo, Azores

Portugal

DNA from human peripheral lymphocytes (J. Bruges Armas)

Laboratory of Glycobiology, instituto de Tecnologia Química e Biológica

Portugal

Disease-focused biobank, bank of plasma and cerebrospinal fluid (J. Costa)

Tumour Bank of Hospital S. João, Porto

Portugal

Tumour tissue samples (F. Carneiro)

The Government of Romania, Ministry of Education, Research and Youth

Romania

LoI (A. Anton)

Fundeni Clinical Institute

Romania

Disease-focused biobank - colonic and rectal cancer (I. Popescu)

"Victor Babes" National Institute of Pathology and Biomedical Sciences

Romania

Disease-focused biobank – tumours, tissue, bone marrow, blood (C. Ursaciuc)

Romanian Bioresource Centre and advances research association

Romania

Establishing a national biobank (S. Fendrihan)

Neuroscience Research Department of Clinical Hospital “Bagdasar-Arseni” – Brain Tumours Bank

Romania

Disease-focused biobank – brain tumours, tumour cell culture (F. Brehar)

Syonic SRL

Romania

ICMed Database (L.Mada)

King Abdulaziz Medical City – National Guard Health Affairs

Saudi Arabia

Extracted DNA, amniotic fluid for prenatal diagnostics, tissues, muscle biopsy (I. Alabdulkareem)

Neuromuscular Biobank of the University of Ljubljana, Medical Faculty, Institute of Anatomy

Slovenia

Population-based & disease-focused biobank (M. Meznaric-Petrusa)

Fundación Istituto Valenciano de Oncología

Spain

Disease-focused biobank – cancer tissue (J. A. López-Guerrero),

Institut de Recerca Biomedica de Lleida (IRBLLEIDA)

Spain

Biobank (X. Matias-Guiu), Disease-focused

Spanish National Cancer Centre (CNIO) Tumor Bank Network

Spain

Disease-focused biobank – tumour tissue (M.M. Morente)

Instituto de Investigacion de Enfermedades Raras – IIER-ISCIII

Spain

Euro-Biobank member, Organisation, rare diseases (M. Posada)

European Commission, Institute for Prospective Technological Studies

Spain

Organisation (E. Zika, I. Baretta)

Red de Bancos de Tumores de Andalucía (TBRNA)

Spain

Composed of tumor biorepositories within the Region of Andalusia (AI Castillo

Red de Bancos de Tumores de Andalucia (Tumor BioRepository Network of Andalusia)

Spain

A distributed hub structure operating as a single biobank

Red de Bancos de Tumores de Andalucia (Tumor BioRepository Network of Andalusia)

Spain

Hub structure operating as a single biobank

HIV BioBank

Spain

Prospective longitudinal studies (Maria Ángeles Munoz-Fernández; Isabel García-Merino)

Spanish Respiratory Research Network

Spain

Pulmonary Biobank Consortium

(C. Villena)

Lung Tissue Biobank

Spain

Tissue Biobank (Ch.Villena)

BIOBANK Hospital Clínic de Barcelona – IDIBAPS (CHB-IDIBAPS BIOBANK)

Spain

Sample collection network (A. Bosch)

CIBERER BIOBANK

Spain

Rare diseases (F.Palau)

CryoBioTech, Escuela Superior de Ingenieros, Universidad de Sevilla (Engineering School, University of Sevilla)

Spain

Centre for research on cryopreservation of biological materials (R. Risco, A. Olmo)

Uppsala Akademiska Sjukhus, Department of Genetics and Pathology, Uppsala University

Sweden

Human tumor tissues for somatic mutational analyses of human cancer (T. Sjöblom)

Swedish Research Council – VR

Sweden

Government agency under the Ministry of Education and Research (P. Ormling)

Lund University, University Hospital, Department of Laboratory Medicine

Sweden

Research on infections and cancer

Uppsala Biobank

Sweden

Anna Beskow

Department of Clinical Sciences, Lund University

Sweden

Diet and Cancer Study, Preventive Project (J. Manjer)

Swiss Biobank

Switzerland

Cell bank, R&D services in regenerative medicine sector: hematopeitic, mesenchymal and progenitor cells (D. Medjahed)

Stiftung biobank-suisse / foundation biobank-suisse

Switzerland

Network of disease-oriented research biobanks (D. Simeon-Dubach)

Fisher BioServices, Fisher Clinical Services GmbH

Switzerland

GMP BioBank storage facilities, offer secure and flexible Biorepository facilities for biobanks (D. Allen)

Center for Medical Systems Biology, Leiden University Medical Center

The Netherlands

Population, isolate and disease-focused biobanks, genotyping and phenotying infrastructure DNA/Serum (GJB van Ommen)

CLB/ Amsterdam Medical Center

The Netherlands

Diseasefocused biobank,. Longitudinal HIV/AIDS (Amsterdam Cohort) (H. Schuitemaker)

Leiden University Medical Center

The Netherlands

Disease-focused biobank, CVD risk factors, Intervention trial.

(W. Jukema)

Leiden University Medical Center

The Netherlands

Disease-focused biobank, 3 cohorts, migraine & headache (Ferrari)

Leiden University Medical Center

The Netherlands

Disease-Based, dyslipidemia (Smelt)

Leiden University Medical Center & ErasmusMC

The Netherlands

Disease-focused & population-based biobank, Osteoathritis (Slagboom / van Duijn)

NL Epidemiological Study on Depression and Anxiety (NESDA)

The Netherlands

Disease-focused biobank,

(B Penninx, VU)

NL Twin Registry

The Netherlands

Population-based, deep-phenotyped. DNA / Serum/ RNA). Various diseases (D.I. Boomsma, VU)

Rheumatoid arthritis

The Netherlands

Disease-focused, (Huizinga LUMC)

UMCU/ UMCG

The Netherlands

Disease-focused biobank, Type 2 Diabetes (C.Wijmenga)

UMCU/ UMCG

The Netherlands

Disease-focused biobank, Coeliac disease (C.Wijmenga)

National Institute for Public Health and the Environment

The Netherlands

Database of participants of the Monitoring Project of Cardiovascular Disease Risk Factors, MORGEN cohort study, MORGEN-EPIC cohort study, Doetinchem (H. Bas Bueno-de-Mesquita)

UMC Utrecht, department of cardiology

The Netherlands

Disease-focused biobank – CVD cardiomyocytes (P.A. Doevendans)

Radboud University Nijmegen Medical Center, Department of Epidemiology and Biostatistics

The Netherlands

Nijmegen biomedical study – age-stratified random sample of the population, polygene-Nijmegen study – population-based collection of germline DNA (A. Kiemeney)

LifeLines

The Netherlands

Population based of northern provinces (S. Poppema)

University Medical Centre Utrecht

The Netherlands

SMART study (S.S. Soedamah-Muthu)

Amsterdam Medical Center

The Netherlands

Disease-focused biobank, Dyslipidemia (Kastelein)

Erasmus Rucphen Family Study

The Netherlands

Population-based biobank (w. fam. Structure, isolate), DNA / Serum, deep-clinically phenotyped (C van Duijn)

ErasmusMC

The Netherlands

Population-based biobank (cancer, cardiovascular, neurological, psychiatric, endocrine, locomotor and ophthalmological disorders) ERGO/EPOZ, (Hofman, van Duijn)

Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht

The Netherlands

PROSPECT-EPIC cohort study (P.H.M. Peeters, C.H.van Gils, Y.T. van der Schouw, B.J. Slotboom)

Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht

The Netherlands

DOM cohort study (P.H.M. Peeters, C.H. van Gils, B.J. Slotboom)

LifeLines Cohort and Biobank

The Netherlands

Population-based & disease-focused biobank (B.H.R. Wolffenbuttel)

Antoni can Leeuwenhoek Hospital- Netherlands Cancer Institute

The Netherlands

One population-based biobank and three disease-focused biobanks (FE van Leeuwen, LJ van’t Veer, M Rookus, MK Schmidt)

Dkuz Eylül University Faculty of Medicine

Turkey

Contact person for biobanks in Turkey (M. Özgören)

Genetics Department, Institute for Experimental Medical Research (DETAE), Istanbul University

Turkey

(U. Ozbek)

University of Leicester, Department of Health Sciences

United Kingdom

Leadership role in international biobank harmonization initiatives – P³G, PHOEBE (P. Burton)

onCore, National Cancer Research Institute NCRI

United Kingdom

Biobanking organisation, prevention, diagnosis and treatment of cancer (A. Carter)

National Cancer Research Institute

United Kingdom

Consortium of institutions: development, management & use of cancer biobanks (J. Cope)

AstraZeneca Charnwood, BIOSES

United Kingdom

Pharmaceutical industry, biobanks in industry (J. Corfield)

Biobank Services, National Health Service Greater Glasgow & Clyde

United Kingdom

Biobank ELSI and logistics (J. Hair)

Dubowitz Neuromuscular Centre Neuromuscular Biobank

United Kingdom

Disease-focused Biobank – muscle and skin tissue and primary cell cultures (F. Muntoni)

Geneservice Ltd.

United Kingdom

Gene and clone collections (A.J. Walker, C. Murray)

UK Stem Cell Bank

United Kingdom

Cell Culture Collections (G. Stacey)

European Collection of Cell Cultures - ECACC

United Kingdom

Cell Culture Collections

(D. Lewis)